Resources
Resources
Following are links to websites you may find helpful. Simply click on a link to visit each website.
General information about Lyme and TBD:
- US National Library of Medicine's PubMed research database (with over 8,500 Lyme research studies listed, and thousands of studies on other TBDs, too.)
- Lyme and Tick-borne Diseases Research Center (at Columbia University Medical Center)
- LymeDisease.org
- Nat'l Lyme Disease Memorial Park Project
- Medline Plus -from the National Institutes of Health
Patient Assistance
- Lyme Test Access Program (Lyme Tap) (testing assistance for those who qualify)
- LymeLight Foundation (offers grants to anyone aged 3-25 diagnosed with Lyme disease who can demonstrate a qualified financial need)
- Patient Advocate Foundation (insurance & healthcare access problems)
- Disability-Claims.net (filing assistance)
Lyme Disease Treatment Guidelines:
Two Schools of Thought
There are two Standards of Care, or sets of treatment guidelines, used in diagnosing and treating Lyme disease patients in the United States: one from the Infectious Diseases Society of America and one from the International Lyme and Associated Diseases Society (ILADS). Both are recognized by the United States Department of Health and Human Services, as they have each met the requirement of being based upon peer-reviewed, scientific research evidence. Click the link below.
Evidence-based guidelines for the management of Lyme disease.
Before deciding upon a specific treatment plan for a patient, medical professionals must take into consideration that the scientific evidence about Lyme and tick-borne diseases is still emerging. It may be very helpful to review all of the recent testimony scientists and physicians presented to a review panel during a hearing held to examine the 2006 Infectious Diseases Society of America's Lyme Disease Treatment Guidelines.
The hearing was held on July 30, 2009 in order to determine if the 2006 IDSA Lyme Treatment Guidelines reflect all of the worldwide, peer-reviewed scientific data and whether these guidelines need to be modified and/or rewritten, based on the evidence presented. Much of the scientific research presented pertained to the problems associated with the currently employed testing methods, the evidence that strongly supports the existence of persistent Lyme Borreliosis in some cases, and the treatment of Lyme disease.
For additionial information, please read CALDA Executive Director Lorraine Johnson's excellent article:
Lyme Disease: Two Standards of Care
-NIH
Testing information
Click on a link below for more information about tests.
Microbiologist Tom Grier on the Problems in Lyme Disease Testing
http://www.lymeinfo.net/medical/LDSeronegativity.pdf
(click on Seronegativity file on link above)
http://www.ilads.org/lyme_disease/about_lyme.html
IGeneX, 800-832-3200
Stony Brook, 631-444-3824
http://www.uhmc.sunysb.edu/pathology/labsvs/ticklab.htm
Clongen Laboratories, 877-256-6436
http://www.clongen.com/index.php?option=com_content&view=article&id=11&Itemid=76
Lyme and TBD
media resources
- Under Our Skin (multi award-winning movie produced by Open Eye Pictures)
- Cure Unknown: Inside the Lyme Epidemic - award-winning book by Discover magazine's senior editor, Pamela Weintraub. Recently named Best Book, 2009, by the American Medical Writer's Association.
- The Lyme Disease Solution by Kenneth Singleton
- Healing Lyme by Stephen Buhner
- Coping with Lyme Disease by Denise Lang
If you use Facebook and have been diagnosed with Lyme disease or another tick-borne illness and you are a Georiga resident, leave a message on our GALDA Facebook page to learn more information about Georgia patient support groups.
http://www.facebook.com/pages/Georgia-Lyme-Disease-Association/156051833921
If you are not on Facebook, you may contact us for more information by email: info@GeorgiaLymeDisease.org
Our downloadable brochure:
Georgia Lyme Disease Association
Lyme Disease
copyright: Georgia Lyme Disease Association
Pets and tick-borne diseases
Pets can contract Lyme disease and other tick-borne illnesses as well. For more information go to:
Lyme Disease in Cats
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